A neighbor of mine mentioned on a neighborhood website that she had a free table to anyone who could use it. When i saw the photo, i knew it would be perfect for Reggie!

And, as you can see from photo below, he seems to enjoy it very much.

Many thanks to Allison Mahlstedt for her compassion and generosity.

“Allison, thank you again for your wonderful gift of the table. Because of you, Reggie Bibbs has an office desk that he can feel proud of everytime he sits down behind it! Since I can’t post photos on the neighborhood website, i have posted them on Reggie’s neurofibromatosis website so you can see for yourself. Thank you, again! You are an angel!”

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Posted in NF.

“Being Positive is a choice. I choose to be positive even when things are not as good as I want them to be. We can speak it into existence. I can say, my glass is almost empty or my glass is almost full. Talking about the positive, bring positives results. ”

– Reggie Bibbs

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Posted in NF.
Reggie sewing on his pants.
Reggie sewing on his pants.

…just to put on his pants!

I was chatting with Reggie this morning and asked him what he was doing. He said, “I’m sewing my pants.” Of course, I asked, “Why?” He said that the tumors in his leg have grown so much that he has to sew his pants on as his leg is too large to put his leg through.

Reggie sewing his pants on.
Reggie sewing his pants on.

Which is understandable for anyone who has seen Reggie’s leg But here’s the part you didn’t know…when Reggie buys pants, he needs to buy two pair so that he can cut the left left off from the second pair and sew it onto the first pair so that he has a left pant leg that is double in size.

Can you imagine having to do this every day just to put on your pants?  I sure can’t! If anyone has any solutions to this problem, we’d love to hear them. I’m afraid Reggie’s leg is going to continue to grow and grow until surgery, medicine or life catches up.

Whenever Reggie needs new pants, we head down to the neighborhood Fiesta Store because it’s close by and they sell the brand of pants that fit Reggie the best, Dickey’s work pants.

Never bought clothes in a grocery store before but, in this case, it works well for all.

Thanks to Reggie’s experience working for Goodwill, he learned a lot of skills including upholstery repair where he quickly learned how to work a needle and thread.

Never once have I heard Reggie complain about living with neurofibromatosis and all the challenges that it presents. Never. I’ll tell you right now to the entire world, Reggie is a much better person than I am, that is without a doubt!

Posted in NF.

To All: The Just Ask World Tour will visit as many major cities in the U.S. and Canada as we are able to raise awareness of neurofibromatosis. Driving an old school bus cross country is not inexpensive. The travel expenses, i.e., fuel, motels, meals, laundry, bus maintenance, etc., add up very quickly. Think help much it cost to drive your family to your last vacation spot…then triple it! That is why it is so important for us to receive funding through our supporters as we are operating without any financial assistance from any NF organization or corporate sponsorship. The Just Ask World Tour consists of two guys driving around trying to make a difference foreveryone challenged by neurofibromatosis. Any help you can give us would go a long way in ensuring we’ll be able to visit your town! Thanks, everyone, Reggie W. Bibbs and I love you all!

Please click on link below if you can help! Thank you!!!

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Posted in NF.
seethingsdifferently
#3 in a series of ads from the Just Ask Foundation to raise awareness of neurofibromatosis.

 

In preparation for our Just Ask World Tour promoting awareness of neurofibromatosis, we are preparing special ads that we will send to the newspapers of the cities we are about to visit to see if they would run them as a Public Service Announcement while we are in town or afterward as a reminder or before as a teaser.

We have a bunch of really cool headlines but this is, by far, my favorite!

If anyone would like copies of the ads to try to get your local newspapers to run them, I would be happy to supply the files. Like Reggie says, Just Ask!

For more medical type definition of neurofibromatosis, I like the Mayo Clinic description best:http://www.mayoclinic.org/diseases-conditions/neurofibromatosis/basics/definition/con-20027728

For more information about everything in regard to support, education, research and awareness, we like the Children’s Tumor Foundation!

Posted in NF.

Just Ask in the News!!!

Thank you, Kim Hogstrom, for a very wonderful article about Reggie W. Bibbs, neurofibromatosis and the Just Ask Foundation! It was beautifully written, sensitive and very, very positive!

I would also like to thank the editor of The Leader, Jonathan Garris, for giving it such prominent placement on the front page!

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Posted in NF.

IMG_9621Man, you have no idea how long Reggie and I have waited for this moment where we can finally say, “The Just Ask Bus is ready to roll!”

Thanks to the kindness and generosity of John Coleman, at Auto Upholstery by Coleman in Houston, we have a totally new interior with seats, cabinets and everything! I can’t tell you how proud I am to have our new bus represent the Just Ask Foundation as we raise awareness of neurofibromatosis throughout the United States and Canada!

We are so grateful to all of our friends who donated their time and money to make this bus a reality! Of course, we’re broke now but very happy! Thank you all for your nonstop support!!! Onward and upward!

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The Winner!
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The Undies!
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The Start!

The Just Ask World Tour descended on Downtown Houston today to witness the first ever Cupid’s Undies Run in the Bayou City!

VIDEO OF THE START

Reggie and I had no idea what to expect but what we witnessed just blew us away!

Try to imagine 350 half-naked runners taking to the streets of Houston in celebration of their fundraising for the Children’s Tumor Foundation.

350 of the nicest, most kind-hearted people in the world who not only ran in their undies to raise awareness of and money for neurofibromatosis, the same disorder that Reggie has. Money raised during the Run will help fund clinical trials, discover better treatments and hopefully find a cure!

CHANNEL 13 PHOTOS

Reggie and I had the pleasure of hanging our with the organizers of Houston’s first race and, I got to tell you, we had a blast!

VIDEO OF THE AWARDS

I’ll write more later but, right now, I’m more interested in uploading the photos and videos to Reggie’s Flickr account. Watch for the links here!

PHOTOS

HOUSTON CHRONICLE PHOTOS

http://m.chron.com/entertainment/slideshow/Cupid-s-Undies-Run-Houston-2015-103274/photo-7526613.php