new Just Ask ad promoting neurofibromatosis awareness
JustAskFoundation.org

In preparation for our Just Ask World Tour promoting awareness of neurofibromatosis, we are preparing special ads that we will send to the newspapers of the cities we are about to visit to see if they would run them as a Public Service Announcement (meaning for FREE!) while we are in town or afterward as a reminder or before as a teaser.

We have a bunch of really cool headlines but this is, by far, my favorite!

If anyone would like copies of the ads to try to get your local newspapers to run them, I would be happy to supply the files. Like Reggie says, Just Ask!

 

For more medical type definition of neurofibromatosis, I like the Mayo Clinic description best: http://www.mayoclinic.org/diseases-conditions/neurofibromatosis/basics/definition/con-20027728

imageToday, Reggie and I went to Saltgrass Steak House, in Meyerland Center, and were treated like visiting Royalty! There were at least 20 people waiting but they seated us immediately!

The Meyerland Saltgrass has always been one of our favorite restaurants in Houston because they are just great…fun, caring people who are super attentive and go above and beyond in making you feel at home!

Our waitress today was Caitlyn who was just terrific! Thank you, everyone! And the food was outstanding, too!

The guys came over to welcome Reggie back to town after hangin’ with his NF brethren in San Diego and Los Angeles.

It’s always great to see old friends like Mark Sansouci, William Hughes, John Person, Hayden West, Laura Wood, Mina Hughes and Matt Jones.

It’s been a while since we’ve done a Music Night and all agreed, it was long overdue! The boys and Laura were in fine form tonight.

 

 

Welcome to JustAskFoundation.org! Well, you got to hand it to Reggie, he knows where all the great parties are with the best food and drink and the best people! He couldn’t have done any better than Sunday Night when he ventured over to his friend’s house, world renowned photographer Greg Gorman’s Hollywood digs! gormanphotography.com I hope they mentioned neurofibromatosis in between all this other stuff! And Rick Moors from The Bonedaddys showed up which is always a fun thing!

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Greg Gorman cooking up something in his fabulous kitchen that Reggie would steal in a minute if he could!
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Greg Gorman and Reggie Bibbs toasting the Just Ask World Tour atop Greg’s Killer Terrace Patio.
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Rick Moors of The Bonedaddys, Greg Gorman, Just Ask Founder Reggie Bibbs, and a dog.
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The dog is looking for his 15 minutes apparently. Either that or Reggie stole his chew toy, again.
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Another shot of Greg and Reggie discussing the issues of the day on Greg’s patio! What a view!
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Lisa Lazarro Dickson, Rick Moors and Reggie Bibbs planning something sinister in Greg’s dining room.

 

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Reggie Bibbs and Kevin Nealon

Our fearless leader, Reggie W Bibbs, and some guy in a ball cap that looks a lot like the famous comedian from Saturday Night Live and Weeds, Kevin Nealon, catching up on old times! Kevin is a super supporter of the Just Ask Foundation, awareness of neurofibromatosis, and Reggie and even has a link to Reggie’s site on his homepage, kevinnealon.com.

It’s not uncommon for Kevin to call or text Reggie from the road just to see how he was doing. He’s a great guy! Reggie first met Kevin and his wife Susan after a show in Manhattan Beach when Reggie and friend, Scott Dickson, went to the show. After the show, Kevin came out to meet Reggie and Scott. They had such a good talk, Kevin went backstage and brought his wife, Susan, to meet Reggie.

Sorry, Scott, but apparently you didn’t make as big an impression.

Reggie presented a Just Ask t-shirt to both Susan and Kevin and a beautiful friendship arose.

Now, whenever Kevin comes to Houston for a show, there are usually 8 passes at Will Call waiting for us. One year, he wore his Just Ask shirt during his comedy routine. But what’s really cool is hanging out with Kevin before and after the show.

Kevin Nealon is, quite possibly, the nicest person on Planet Earth. And we are so appreciated of his friendship!

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Reggie Bibbs, Kevin Nealon, Scott Dickson and Lisa Dickson.
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Reggie and Kevin say adios till next time, maybe in May during NF Awareness Month.
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Kevin showing Reggie something interesting on his phone but Reggie won’t talk.
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Kevin and Reggie solving the world’s problems at the Beech Street Cafe!

 

 

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Ok, it may not look very pretty on the inside but it’s doing a world of good on the outside!

The reason the inside is so bare is because Reggie and I were determined to get on the road as quickly as possible to raise awareness of neurofibromatosis so we got the bus as mechanically sound as possible while designing a vinyl wrap on the outside to promote our message.

Anyway, as soon as Reggie returns from his California visit we will hit the road in the bus. interioraAnd, as always, donations are always appreciated and very much needed to keep the tour alive. Please visit  http://www.gofundme.com/JustAskWorldTour to help! Or, if you prefer, checks can be sent to our Just Ask World Headquarters at:

Just Ask Foundation

4818 Heatherbloom

Houston, TX 77045
Thank you all so very much for your support and compassion!

lou

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Reggie Bibbs of the Just Ask Foundation with the Jerky Boys from Buc-ee’s #17 featuring the one and only, Dalton Hunter!
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Reggie and Dalton Hunter, one of the nicest young men you’d ever want to meet! If you have a 17 year old daughter, you’re going to like Dalton.

 

Just Ask Visits Buc-ee’s  The Greatest Convenience Store/Highway Stop and Home of the Cleanest Restrooms in the World and the World’s Greatest Employees!

This from Reggie Bibbs:

“I’m so happy about last night, I don’t know where to start, or how to put it into words.

Last night at Buc-ees was really nice. I met a lot of new friends. Now a lot of people know more about Neurofibromatosis. Every person I met made me happy with their kindness and acceptance.

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Saraya Gabriela Navarro, Brandon, Reggie and Jon at Buc-ee’s #17 in Lulling!

Imagine, someone wanting to have their photo taken with you. It may seem to some, what’s the big deal. But when you have walked in my shoes, and the shoes of my friends that have NF. You just remember when counter 1-10-15someone is nice to you, like my new friends were to me at Buc-ee’s last night. It just gives you a good feeling.

There was this little kid with his Dad, I didn’t expect it, But this kid said to me, with exciment and kindness said. HELLO! with a smile. Thank you Buc-ee’s Employees.

Make it a Tremendous Day!

Reggie”
Ditto!  – Lou

Photos at:

https://www.facebook.com/media/set/?set=a.785460314858868.1073741827.189394034465502&type=1

https://www.flickr.com/photos/reggiebibbs/sets/72157650219920322/

Posted in NF.
Our new ad for the Just Ask World Tour campaign.
Our new ad for the Just Ask World Tour campaign.

In preparation for our Just Ask World Tour promoting awareness of neurofibromatosis, we are preparing special ads that we will send to the newspapers of the cities we are about to visit to see if they would run them as a Public Service Announcement (meaning for FREE!) while we are in town or afterward as a reminder or before as a teaser.

We have a bunch of really cool headlines but this is, by far, my favorite!

If anyone would like copies of the ads to try to get your local newspapers to run them, I would be happy to supply the files. Like Reggie says, Just Ask!

 

For more medical type definition of neurofibromatosis, I like the Mayo Clinic description best:http://www.mayoclinic.org/diseases-conditions/neurofibromatosis/basics/definition/con-20027728

 

 

 

 

 

 

 

Ronald, the "Hoster", Janecia Jefferson, our beautiful wait person and the Girls of Hooter's!
Ronald, the “Hoster”, Janecia Jefferson, our beautiful wait person and the Girls of Hooter’s!

As a belated Christmas present, I surprised Reggie W. Bibbs tonite and took him to Hooter’s on the advice of Richard B. Slayton who, apparently, goes there every nite!!!

But I digress.

Reggie and I went to the Hooters Kirby at Kirby and the Southwest Freeway in Houston. The moment we walked through the doors, we were treated like Kings, especially Reggie.

Without going through a lot of detail and mushy stuff, let it be sufficient to say that I have not received that level of service and honest compassion in a very long while. Ronald, the “Hoster”, Janecia, our beautiful wait person and Sean, the manager, made us feel like the most important people in the restaurant!

And it was a very nice feeling!

Reggie was totally blown away by everything. Ronald came up shortly after we were seated and very gently asked if it was ok to ask what had happened to Reggie. That’s all Reggie need to tell Ronald everything there is to know about neurofibromatosis in about two minutes.

Then Sean, the manager, came up and talked with us to make sure everything was good and he told us that he had two cousins named Reggie so I guess Reggie is “family!” And that’s what it felt like, family.

Sean Berry, the manager, and a very pretty dark haired girl!  Oh, and Reggie.
Sean Berry, the manager, and a very pretty dark haired girl! Oh, and Reggie.
The very beautiful Janecia Jefferson!
The very beautiful Janecia Jefferson!

Janecia was very kind when we asked if we could take her photo with Reggie and as you can see, very beautiful as well!

Then, as we were leaving, Ronald and Janecia called all the other wait staff and Sean over for a group photo!

Thank you everyone at Hooter’s on Kirby! You guys rocked the place tonight!

Sincerely,

Lou Congelio and Reggie Bibbs

PS – I am going to post this then try to see if I can tag these wonderful people who deserve to be recognized. However, if you know them, please tag away! Thanks!

Santa Bibbs
Santa Bibbs

As 2014 draws to a close, it is not only appropriate but necessary to thank the thousands of friends and supporters that have made the Just Ask Foundation a leader in promoting awareness of neurofibromatosis.

We believe that the more people who know about neurofibromatosis and its many manifestations, the easier it will be for those challenged by NF to enjoy life more fully — no longer encumbered by the prejudices of those who don’t understand.

We intend to continue educating people and reminding them that it doesn’t matter what we look like on the outside, that we are all the same on the inside with the same thoughts, desires, feelings, wants and dreams.

From humble beginnings…

We, at the Just Ask Foundation, are very proud of what we have accomplished to date but, we realize, there is so much more to do.

This past year, we were the recipient of a 1991 GMC school bus that would allow our dreams of a Just Ask World Tour to begin. Many thanks to Tracy Boulware at Deer Lake Lodge & Spa in Montgomery, Texas for their most generous gift and kind thoughts!

Graphic designer, Kim White, of Open Road Creative and our friends at Bayou Graphix helped us incredibly with their expertise, advice and “special” pricing that enabled our bus to become a traveling billboard, helping us reach thousands of people every day just by the mere appearance of the bus at gas stations, restaurants,special events and just driving down the road!

To great things!!

We are very, very proud of the finished result!

in 2014, we started an online fundraising page at GoFundMe which has truly been a blessing. We have already received over $14,000 in donations of our $120,000 goal which has allowed us to make much needed repairs on our Just Ask bus and to visit various cities around Texas!

Hopefully, through continued donations and sponsorships, we’ll be able to travel more extensively throughout the United States and Canada spreading the word about NF.

I would be remiss not to mention the countless individuals behind the scenes that have helped us in so many different ways — spiritually, physically and financially that helped us get to where we are today.

Carolyn Farb, Reggie Bibbs, Greg Gorman

First, and foremost, much of what has happened in Reggie’s life would not have been possible without the kindness, thoughtfulness and generosity of Houston socialite Dr. Carolyn Farb!

Carolyn chaired the first major fundraiser for neurofibromatosis back in 1992 and asked Reggie Bibbs to be featured in the now famous fundraiser, “My Heart Belongs to Daddy” held on the ice rink at Houston’s famed Galleria.

Reggie and the Ladies

 

 

Later, Carolyn introduced Reggie to Los Angeles photographer, Greg Gorman, who to this day remains one of Reggie’s closest friends. Greg gave Reggie the money to buy his first car and on many occasions has flown Reggie out to his home in Hollywood where he invites many of his showbiz friends to meet Reggie and help promote awareness of his disorder.

Reggie and Beyonce. Reggie is the reason Jay-Z had to put a ring on it…

The names of these celebrities would fill a Who’s Who of Celebrities but I will try to name a few: Sharon Stone, Catherine Bach, Shari Belafonte, Quincy Jones, Sugar Ray Leonard, Ricki Lake, Beyonce, Chris Atkins, Rick Moors of The Bonedaddys, and many, many more!

Colin Hay, lead singer and song writer of the music group, “Men at Work”, has been a huge supporter of Reggie and Just Ask the past four years. Besides comp tickets at the door for the Just Ask team, Colin dedicated his hit song, “Waiting for My Real Life to Begin”, at his last performance in Houston. and granted Just Ask exclusive use of the song in perpetuity. Click above to view the song recorded at the Dosey Doe Concert venue in Houston, Texas.

Play ball!!

William Hughes and Matt Jones of the Just Ask Foundation edited their own version of the song using photos from Reggie’s extensive Flickr account. Click here to witness Reggie reaching out to people and raising awareness of NF wherever he goes.

Kevin Nealon

Extra special thanks go to Kevin Nealon, formerly of “Saturday Nite Live” for being an incredible friend to Reggie on and off the stage through VIP tickets, texts, emails, phone calls and linking to Reggie’s website on his own page. Kevin is, by far, one of the nicest people you will ever meet!

Other celebrities and individuals who have gone out of their way to support Reggie and Just Ask include Kenny Rogers, The Neville Brothers, Cirque du Soleil, former Texas Governor, George W Bush, Fort Worth Mayor Mike Moncrief, Dr. Vic Riccardi, Dr. Don Baxter, Dr. John Slopis and Bart Moore of M.D. Anderson Cancer Center, Houston Mayor Bill White, Dallas Cowboy Coach Tom Landry, Houston Roller Derby, Robin Leach, musician Charlie Sexton and many, many, many more!

Reggie and the Psych Ward Sirens form Houston Roller Derby

We are so appreciative of all the help and support we have received to get to where we are today but, quite honestly, we haven’t even begun to accomplish what we feel we must do to make a difference.

Once again, we ask for your generous help and support to allow the Just Ask Foundation to continue our mission to raise awareness of NF so that EVERY human being with NF has a chance to live their life with love, understanding and compassion.

Thank you for all you do!

As Reggie says at the ends of all of his emails, MAKE IT A TREMENDOUS DAY!

Lou talking to Reggie’s hand.

Lou Congelio
Reggie’s Friend
Executive Director, Just Ask Foundation


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Of course, the Just Ask foundation is always accepting donations from our personal community via Go Fund Me, which has already raised over $14,000.Please feel free to connect us via Facebook, Twitter, and thehttp://www.justaskfoundation.org for updates on the Just Ask World Tour!