ANNOUNCING A “JUST ASK” ONE OF A KIND OFFER!

David Groudas Modeling the New Limited Edition Reggie Bibbs Designer T-shirt!
David Groudas Modeling the New Limited Edition Reggie Bibbs Designer T-shirt!

Iris Brown, a longtime supporter and friend of Reggie Bibbs and the Just Ask Foundation, is offering a Special Edition Reggie Bibbs T-shirt Offer to the first 23 respondents!

The front says “Always be yourself unless you can be Reggie Bibbs then always be Reggie Bibbs.” The back has the Just Ask Foundation logo.

Iris’ son, Phillip Groudas, came up with the idea to help raise awareness of NF and also raise money for the Just Ask Foundation! Yay, all proceeds benefit the Just Ask Foundatation.

HURRY, LIMITED SUPPLY!!!
Since this is just a trial offer we have only a limited amount of shirts to offer, 23 to be exact. Sizes available are:
4 medium 7 large 8 Xoom 4 2x-large

Cost is a mere $23.00 which also includes shipping! No International orders please.

If you would like to order one, please email Iris at [email protected] She will supply address to send check and provide all details for you.

Note: I was just told the shirts are actually black, not blue, which is perfect! Chicks dig black!!!

Posted in NF.

Thank you, Kathryn Tyler and Poison Girl for hosting our first ever Just Ask Fundraiser! Thank you to everyone who showed up and those who chose to donate via our gofundme account instead. A Grand Total of $1,500 was raised which will cover most of the expenses of our next world tour stop as soon as Reggie is up for the travel.

The Art Car Gang!
The Art Car Gang!
The ad gang arrived!
The ad gang arrived!

 

Thank you, again, everyone for a great afternoon at Poison Girl and a great opportunity to raise awareness of Neurofibromatosis to a new audience!

Robert Anthony Weston, Laura Wood and Lou Congelio at Poison Girl Lounge in Houston.
Robert Anthony Weston, Laura Wood and Lou Congelio at Poison Girl Lounge in Houston.
Our good friend Elizabeth Bertrand!
Our good friend Elizabeth Bertrand!

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Raffle Prizes Include

Houston Astros Tickets, Wildcat Golf Club Passes, Gift Certificates from Menchie’s, Mandola Deli, Tila’s Restaurante y Bar, with more added hourly!

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26 Tickets to be raffled!

TilasLogorb

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$20 Menchie’s Gift Certificates
dolabill
Mandola Deli Dola Bills

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4 passes. No Blackout Dates!

If you are unable to attend Reggie’s Fundraiser, you still can help by visiting

http://www.gofundme.com/justaskworldtour

 

 

Posted in NF.

 

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I just talked with Reggie W. Bibbs and although he will be released from M.D. Anderson tomorrow, he will not be able to attend the fundraiser on Sunday that we have had planned for a couple of months.

He was to bake some cakes and hang out with all his friends but he will be wheelchair bound with an IV pole and will need medical supervision.

But he asked that we go ahead, have fun, and have the fundraiser anyway and he will join us in spirit and possibly on Facebook!!!

Below is a link to the save the date Web post. A more creative poster will take its place tomorrow.

If you cannot attend the fundraiser or don’t live in Houston, you can still help out with a donation to the Just Ask Foundation Gofundme campaign at

Http://www.gofundme.com/justaskworldtour

Thank you all for your prayers and concern.

http://www.justaskfoundation.org/save-the-date-just-ask-fundraiser-sunday-july-12/

Posted in NF.


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Just Ask Fundraiser at Poison Girl

Sunday, July 12, 2015

4 to 10 pm

(713) 527-9929

1641 Westheimer Rd, Houston, TX 77006

Includes:

All Day Raffles!    Bake Sale by Reggie Bibbs     Art Cars     Just Ask t-shirts   Houston Roller Derby skaters         Astros ticket raffles!     Maybe a food truck!

All proceeds benefit the Just Ask Foundations and the Just Ask World Tour!

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Hands down, dive bars are our favorite joints to hang out in and Poison Girl in Houston is no slouch when it comes to providing good, clean dive bar fun. There’s a few pinball machines, cheap, heavy drinks, a hip cast of urban bohemians bellied up to the bar and a killer jukebox—this one being heavily, okay totally, steeped in all music Texas, from country to punk, rockabilly, indie and some hip-hop. Poison Girl brings to the Houston bar scene exactly what it seemed to be so lacking in, a dive bar that knows it’s a dive bar and doesn’t want to be anything more than that.           A portion of all Poison Girl proceeds of July 12, 2015 will benefit the Just Ask Foundation, a 501 (c)(3) dedicated to raising awareness of neurofibromatosis.just ask 18968977458_0d34816213_b

Posted in NF.

Over half of patients treated with selumetinib in phase I trial see reduction in plexiform neurofibromas.

New York, NY (PRWEB) June 08, 2015

As hundreds of the world’s leading NF experts convene in Monterey, California for the Children’s Tumor Foundation NF Conference, the largest gathering dedicated to neurofibromatosis (NF), it was announced today that for the first time in the history of the treatment of plexiform neurofibromas (PNs), over 50% of patients saw decreased volume in these inoperable tumors. In a presentation titled “The Promise of MEK: Therapeutics for NF1″, Brigitte C. Widemann, MD, of the National Cancer Institute (NCI), reported that response data in a phase I trial for children an Continue reading

Caught it in the nick of time…mechanic told me I was running on air!!! Damn! If it’s not one thing, it’s another. Pretty soon we’ll probably have to start thinking about flushing the oil and rotating the battery.image

Reggie in CanadaThe NINDS supports clinical research aimed at understanding the natural history of tumors in NF2 and determining possible factors that may regulate their growth patterns. Using diagnostic imaging, eye examinations, hearing and balance tests, neurologic examinations, blood and genetic testing, and quality of life assessements, researchers hope to better characterize the impact of NF2 on individuals and look for possible factors that may affect disease progression.

Reggie at the Houston International FestivalThe NINDS is supporting ongoing research with a large group of children with NF1 to find associations between brain abnormalities and specific cognitive disabilities. Finding these links would give doctors an indication of the kinds of learning disabilities parents and their children could anticipate and help them develop early intervention programs.

Reggie and RieCurrent basic and clinical research is aimed at understanding how the genetic mutations that cause the benign tumors of NF1 also cause neurons and neural networks to form abnormally during fetal development, which later result in the learning disabilities and cognitive deficits of children with the disorder. The NINDS also encourages research to develop improved methods to diagnose the neurofibromatoses and identify factors that contribute to the wide variations of symptoms and severity of the disorders.