The Bus Stops Here!

Texas NF Symposium 2014 at MD Anderson Cancer Center in Houston

Just Ask founders Reggie Bibbs and Lou Congelio drove the Just Ask Mobile to MD Anderson Cancer Center last Saturday, August 16th, to attend the annual NF Symposium presented by the Texas NF Foundation of Dallas, Texas.

Cindy Hahn, Executive Director of the Texas NF Foundation, and Emily Deutscher, Development & Events Director at the Foundation, did a great job in putting together an incredible event that allowed everyone to reconnect with NF friends and families from years past while also making many new friends!

A “Who’s Who” of NF doctors, surgeons, researchers, and clinicians were on hand to update us on the latest news and treatments. Among the doctors and topics discussed were:

Overview of NF and Genetics – John M. Slopis, M.D., MD Anderson Cancer Center

Benign and MPNST’s Surgical Resection – Ian E. McCutcheon, M.D., MD Anderson Cancer Center

Neuropsychology, Education and NF – M. Kris Frost, M.Ed, and John M. Slopis, M.D., MD Anderson Cancer Center

Clinical Research and New Protocols - Laura J. Klesse, M.D., Dallas Children’s Medical Center

Scolosis/Psuedarthrosis – Charles E. Johnston, M.D., Texas Scottish Rite Hospital, Dallas

Brain Tumor – Wafik Zaky, M.D., MD Anderson Cancer Center

Thanks you Cindy, Emily, Dr. Slopis, and the Texas NF Foundation for all you do for the NF community. I don’t want to think what it would be like without you!

For more information on the Texas Neurofibromatosis Foundation, visit or follow them on Facebook.

Reggie Bibbs and Dr. Slopis
Reggie Bibbs and Dr. Slopis

Posted in NF.

busindrivewayThe Just Ask Mobile is in Reggie’s driveway! We would like to take this opportunity to thank those hundreds of friends and family who have given of their time, encouragement, love and, yes, money, to make Reggie’s dream a reality!

Please, stand up and take a bow!!!
And, while you’re standing up, we humbly ask if you could take out your wallet, once again, for we still have a long way to go, literally and figuratively!
We are now wrapped and road worthy. Now we just need to raise enough funds to keep us on the road to as long as possible to educate people and raise awareness of neurofibromatosis throughout the United States, Canada and, soon, the world!
To donate, please click here: Design: Kim White Bus Photography: Arthur Meyerson Scott Dickson Bus Wrap: Bayou Graphix Bus Donated by: Deer Lake Lodge Spa & Resort

Thank You!I want to say thank you to all of my friends for the support in making the dream of the Just Ask! Tour Bus a reality. Without your prayers, finical support, manual labor, and the kind words that so many of you offer everyday. I wouldn’t be where I stand today if it were not for your support, And for that Lou and I thank you.
My next point I want to make. If you have a dream or a desire to accomplish. Expect setbacks expect tears and very hard times. Ask Ask us. Didn’t mean for the play on words, but it’s true. Lou and I will tell you. These are things we experienced in this bus campaine. Somedays you may feel like it’s to hard. But if you never give up, you can make your dream happen. It may not happen as quickly as you want, but with a little pataince faith, and believing in yourself. You can make your dream a reality.

Reggie Bibbs

Reggie Bibbs and Rod “Dirty Sanchez” Lozano

“May 17th was World Neurofibromatosis (NF) Awareness Day and the Psych Ward Sirens celebrated with long time Siren fan Reggie Bibbs.

 Reggie lives with NF and is the founder of the Just Ask! Foundation. Just Ask! is a non-profit organization dedicated to spreading awareness about NF through the people most affected by it.

You’ll often see Reggie at bouts with his friend Lou Congelio. Reggie and Lou were named Super Fans of Houston Roller Derby at the league’s awards banquet earlier this year.

For more information about NF and Just Ask!, you can go to

- Rod Lozano,  Coach, Psych Ward Sirens


Ok, this is Lou talking now and I want to thank Rod “Dirty Sanchez” Lozano for putting together a night that Reggie and I will not soon forget!

As soon as we got through the doors, we were greeted by Rod with the wonderful poster card you see in the photograph signed by all the members of the Sirens.PsychWardSirens-Reg

But it didn’t stop there, Rod then set up an impromptu photo sessionwhere all of the Sirens came to get their photo taken with Reggie!

Then, on top of that, Rod bought two Just Ask tshirts and made a MAJOR contribution to the Just Ask Mobile Bus Fund!!!

Thank you, Rod, “Dirty” and all of the Sirens for an incredible evening of love, friendship, and the best Derby action on the Planet Earth!!!

Farah Zaghmouth
Farah Zaghmouth and Reggie Bibbs

Reggie and I stopped at Star Pizza in the Heights for a pre-game meal before attending the Houston Roller Derby at the Bayou Music Theatre last Saturday.

As soon as walked onto the patio at Star we were approached by Farah who made us feel like we were the only customers at the restaurant.

Thank you Farah for a wonderful visit, your beautiful smile and the best damn pizza on the planet! If you’ve never been to Star Pizza, you’re missing out on some of the best pizza in the city.

My personal favorite is the New York style, whole wheat Starburst or the Joe’s Special, mad with fresh sautéed spinach and lots of fresh garlic!!!!!!!

Reggie's first baseball gameThe neurofibromatoses are a group of three genetically distinct disorders that cause tumors to grow in the nervous system.  Tumors begin in the supporting cells that make up the nerve and the myelin sheath (the thin membrane that envelops and protects the nerves), rather than the cells that actually transmit information.  The type of tumor that develops depends on the type of supporting cells involved.

photo 5 photo 4 photo 3It’s Official!!! The Just Ask Mobile has passed inspected and is now officially APPROVED for travel! This is going to be so great! I can’t wait to get going.

The lady at the Jiffy Lube on Hillcroft at the Beltway was so nice!

Her name was Crescenda I think. Lou knows. Anyway, she was fussing all over me and made me feel like I was really important! From now on, I know where we will be taking the Just Ask Mobile for oil changes and inspections…the Jiffy Lube at 14450 Hillcroft and the Beltway!

Lou and I drove around in the bus after we passed inspection. It was a great feeling knowing that this was the final hurdle and we passed! Like Lou says, Upward and onward!

Also, we are still in need of continual donations to keep us on the road for basic travel expenses like fuel, food, motel, French masseuse, and soft drinks. We are currently at $2,740 but, hopefully, once we’re on the road, people will see us, we’ll talk to them and hopefully educate them a little about NF.

Please feel free to DONATE HERE NOW, SOON and OFTEN! Thank you very much!

mBH2OJLUhdL65HvaVLqGZG_lAs3K6oTNDUddN8GPr1gTo all of Reggie’s thousands of Facebook friends, I would like to propose a simple, little idea that will produce incredible results if everyone participates. By my estimates,Reggie W. Bibbs and Reggie Bibbsnf and Just Ask Foundation Facebook pages have nearly 15,000 friends and followers. 15,000! If each of you could see it in your heart to donate just $1 to the Just Ask Mobile GoFundMe account, we could be on the road in a matter of weeks. Just $1 each! It’s time that we all take personal responsibility for the noble task that Reggie has volunteered to take on on behalf of everyone challenged with NF. It’s not enough to merely “Like” what Reggie is doing…it’s time to put your money where your heart is! I believe a $1 donation is not too much to ask. Please help us get this bus on the road! We should be on the road right now spreading the word about NF instead of wondering where we’re going to find $77 to fix a fuel pump. If you are a true friend of Reggie’s, please help him take on this huge undertaking by donating a dollar. Just one little dollar!


photo 2


The Just Ask Foundation is currently in the process of planning a 2014 nationwide awareness campaign for neurofibromatosis.

Our multi-targeted campaign will consist of speaking engagements in cities with NF Chapters, television appearances (locally and nationally), ad campaigns, fundraisers, road trips in the Just Ask Mobile, a social media team and, well, you get the picture.

Wow! Those Are Some Really Big Plans!

You are correct. But if we want big results, we need to start with a big plan. Will we accomplish everything on the plan? Maybe. Maybe not, but until we try, we’ll never know.

But, in our mind, if we can make a difference in one person’s life, we will have succeeded. Big time!

Do You Have Any Success Stories?photo 3

Sure, tons of them, but this one pretty much says it all.

Earlier this year, we received a note from a young college student in Canada who had recently been diagnosed with NF.

She had met Reggie a few years before at an NF symposium in Calgary and very much wanted to see him again. She wrote the following letter to the Just Ask Foundation:

“It would mean the world to me if Reggie Bibbs would be able to attend the NF conference in Vancouver in October. Reggie is my inspiration, and I know you probably hear that a lot. But my story would be a whole lot different if I didn’t have the opportunity to meet Reggie a few years ago.

“I Was Ashamed for Having NF.”

She continued… “It has NOT been an easy journey for me. I’ve suffered from serious depression and a serious eating disorder, just because I was ashamed of who I was. I was ashamed for having NF, and I was embarrassed to tell people about my medical condition.

All I wanted was to be normal, but to be normal I needed to shut out pretty much everyone from my life and live behind a curtain of fake emotions and fake stories. It wasn’t until I met and heard Reggie speak that I felt comfortable enough to come clean, and to finally accept myself for who I am.

Without Reggie, I don’t even know if I would be here today.”

photo 4Ok, I’m Hooked! What Can I Do to Help?

Funny you should mention that!

It’s going to take a little money. Not a fortune but certainly more than what we have in the bank right now which is about $514.

Up until now, we have depended on the sale of Just Ask! t-shirts and a few donations here and there to make ends meet. Well, quite frankly, to accomplish our goals for 2014, it will require a lot more than a few hundred dollars.

Our Fundraising Goal is $120,000.

Wow, that’s pretty aggressive. Yes, it is, but so are our goals!

Our plan is to target one major city a month via the “Just Ask! Mobile” for 12 months.

That’s $10,000 per month for two people to travel cross country raising awareness of neurofibromatosis. Speaking to NF groups. Appearing on radio programs, talk shows…who knows, maybe even The Ellen DeGeneres Show.

The point is we’re going to be working our butts off raising awareness of NF at every stop and every mile marker on the road. At every truck shop, motel, restaurant and rest stop across the country.

Ok, ok, I said I was hooked!!! Can I donate some money?photo 1

Click on this link and donate as much as you can afford. That’s it. You provide the tools. We’ll do the heavy lifting.

Of course, the Just Ask Foundation is a 501(c)(3) so all donations are tax deductible!

Plus, we will be posting on Facebook, Twitter, Flickr, Vimeo, You Tube and every other social media network we can access to keep you informed of our travels and adventures.

We Are Thankful for Your Help!

As you come together with your loved ones, this holiday season, please remember all of our NF brothers and sisters who may not be as fortunate.  Any money we receive will be used to make life easier and enjoyable for all of us challenged by NF.