IMG_8617IMG_8611

 

 

 

 

 

 

 

 

 

 

 

The Texas Neurofibromatosis Foundation® (Texas NF) presents the 2nd annual Cookies with Santa, a holiday fundraiser and magical experience for the whole family on Sunday, December 7, from 2-4 p.m. at The University of Texas MD Anderson Cancer Center.  Cookies with Santa benefits Texas NF, the Neurofibromatosis (NF) clinics at MD Anderson and Texas Children’s Hospital.ed

Cookies with Santa is designed to appeal to children of all ages but especially for our youngest friends. NF patients, families and friends can celebrate the holidays with festive crafts, holiday music, caroling, cookies, hot cocoa and of course, a visit and pictures with Santa. Jack Frost and his friends will guide your journey through the North Pole. You will learn how to make snow, decorate a gingerbread man, create reindeer food and much more.We hope you will get caught up in the spirit of the season and join us for this exciting event.

IMG_8595Click on the sponsorships link for more detailed information. Your participation in this event will enable us to help make a difference in the lives of NF patients and their families by providing support, information, education and funding for patient outreach programs in Houston plus providing support to the NF clinics at MD Anderson and Texas Children’s Hospital.

Location

The University of Texas MD Anderson Cancer Center
F. O’Neil “Neil” Griffin Conference & Education Center
7455 Fannin St.
Houston, TX 77054

Posted in NF.

FullSizeRenderHad a great day yesterday with Reggie W. Bibbs and the Just Ask Bus! Thanks to fellow Just Ask Board member, William Hughes, we went to see Peter M. Morris at CDM company. They specialize in designing and implementing new work spaces for large companies. Anyway, we get there and receive one of the finest receptions ever. Pete, is a bear hug kind of guy and corrected some back issues I didn’t even know I had!

Sherie Duncan, Peter’s partner, was equally fun, loud and genuine. Coris, the big black guy in the photo, was very warm, gentle and quiet. And I want him on my side at the next NF Patients vs MD Anderson doctors wrestling match at Camp for All next year!!!

Any way, Pete, Sherie and Coris presented Reggie and the Just Ask Just Ask! Foundation with a check for $3,000 to help promote awareness of neurofibromatosis!!!

God bless you Pete, Sherie, and Coris for your compassion, love and support! Also, thank you William and Geo for saying nice things about us!

 

Please, remember Peter, Sherie and Coris and CDM should your company ever need expert help and advice in reorganization your company workspace.

 

http://www.clarkduncanmorris.com

 

 

“May you enjoy a safe and happy holiday season surrounded by friends, family, good feelings, love and hope! And eat LOTS of cake!”  – Reggie

Your friendly, worldwide Just Ask Team: Reggie W. Bibbs, Lou Congelio, William Hughes, Matt Jones, Laura Wood and Hayden West.

Santa Bibbs

Posted in NF.

imageMBNF.ca
@MBNFSupport
Thrilled to confirm @JustAskNF Founder, Reggie Bibbs for #Winnipeg #Manitoba #neurofibromatosis Symposium on Oct. 17. pic.twitter.com/6pNqUisNK9

 

Posted in NF.

Remember that time Reggie used his political prowess to encourage a presidential proclamation for National Neurofibromatosis Awareness Month? We do!

#TBT to 1992, featuring future president George W. Bush, Dorothy, and Reggie Bibbs sharing in the preparation for the official proclamation for Texas NF Day. His father, the current president proclaimed November National NF Awareness Month shortly thereafter.

“National Neurofibromatosis Awareness Month, 1992. By the President of the United States of America
A Proclamation: This week we pause to reaffirm our Nation’s commitment to the fight against neurofibromatosis, a common genetic disorder that affects the nervous systems of more than 100,000 Americans.”

Action is the first step to awareness .
Action is the first step to awareness .

 

Posted in NF.

It seems that not only was Reggie’s courageous story of founding the Just Ask Foundation featured in the Houston Chronicle, but it has also been picked up by nine publications and counting!

The Washington TimesMiami HeraldSacramento BeeKansas City Star, and the Texarkana Gazette all ran Reggie’s most recent interview with the Houston Chronicle. Even a couple leading German publications such as Bild and NewsDE featured Reggie! And the UK’s Disability Today also spotlighted what Reggie is doing for NF Awareness.

The Just Ask Foundation is extremely grateful that this story enthralled both a culturally and geographically diverse audience and helped to continue our mission of spreading awareness of neurofibromatosis.

If you have seen any other newspapers, magazines, or websites with Reggie’s interview, we’d love to recognize them as well!

The Just Ask World Tour depends upon your support to help spread hope and increase awareness of NF, domestically and internationally. Currently, renovations on the interior of the bus are still underway, so any support is greatly appreciated. As always, Just Ask is accepting gracious donations via Paypal and GoFundMe. Just click the green button to the right.

Thank you for your continued interest and support of the Just Ask Foundation and stay subscribed for more exciting news and updates!

Posted in NF.

The Just Ask team had a great day at Second Baptist Church. We met a lot of people in Reggie W. Bibbs bible study group but were very impressed by how friendly everybody was. I felt like we were in the middle of a Reggie Bibbs Fan Club convention. We couldn’t take two steps without someone coming up and saying hi. But we were blown away when Dr. Young recognized Reggie from the pulpit and proceeded to tell the congregation that Reggie was his hero for everything he is doing to raise awareness of NF.

3623a0cb-2fe5-4521-b158-43cce503fa56To all friends of Reggie W. Bibbs:

Both of Reggie’s Facebook Pages are maxed out. The Just ask Foundation crew is quickly putting together a high quality site for all of Reggie’s friends to visit, to respond to and be inspired by. We are trying to gravitate ALL of Reggie’s friends, admirers and sponsors to post comments and questions only about neurofibromatosis and NF related events.

We intend to make https://m.facebook.com/profile.php?id=189394034465502&tsid=0.6271970823872834&source=typeahead
the official website for the Just Ask World Tour Bus.

I know Reggie, myself, Hayden WestLaura Elise WoodWilliam Hughes Matt Jones and the entire staff of Just Ask Volunteers thank you in advance for joining the Just Ask Team.

Posted in NF.

   Just Ask Gang with Kevin

Kevin Nealon, former SNL star and long-time supporter of the Just Ask Foundation, preformed last Saturday, September 20th at Houston’s Improv comedy club. Naturally, the Just Ask crew stopped by for some laughs and photo-ops.

Kevin Shows Some Love

Nealon took the time to reconnect with Reggie before the show and was presented with his very own Just Ask World Tour shirt, which he even wore during his act! This thoughtful gesture even caught the attention of one audience member, who Just Ask-ed about it during the show! Kevin then told them about Just Ask and Reggie.

Afterward, Nealon joined the Just Ask crew to check out the bus. He has been a tireless supporter of the Just Ask Foundation for several years. We can’t wait to catch up with him again when the World Tour hits LA!

Kevin Talks with the Gang

If you are interested in purchasing a Just Ask World Tour shirt, they still are available here. Sizes range from Youth Medium to Men’s and Women’s XXXL.

Thanks to your wonderful generosity and support, the Just Ask World Tour is now able to venture farther and farther from home. However, we’re not done yet! We have taken care of the two most important needs of the bus, mechanical and visual. Now we need to concentrate of the interior and functionality.

Original Bus Interior

This ’91 vehicle sports the original interior. The Just Ask Foundation is not seeking luxury, only functionality. We need seating to accommodate Reggie’s unique needs, such as support for his leg. We also need spacious, lockable storage for t-shirts and other fabulous accessories, a comfortable captain’s chair for the brave bus driver, AC current for laptops and phone charging, exterior locks and privacy curtains.

Any help or suggestions in fixing up the interior of Just Ask Mobile is greatly appreciated. As always, we are accepting donations via Go Fund Me and PayPal. An Austin, TX tour stop is currently in the works, so be on the lookout for the Just Ask Mobile. In the meantime, there will be Just Ask World Tour news and updates regularly posted on social media and our website. Thank you again for your continual support towards promoting awareness of NF.

Posted in NF.

“This is NF” was a 60 second TV public service announcement for the Texas Neurofibromatosis Foundation. Reggie remembers the shoot fondly. “I love this. I remember when we were filming. I felt like a star. The crew was really nice. David Norton Who Produced is, Amazing.” Something that hasn’t changed since the shoot is Reggie’s outstanding modesty. As he says in the video, “It’s great. But then of course it is; I’m in it.”

Posted in NF.